Sometimes you have to adjust

Sometimes you spend Sunday afternoon and evening preparing your list of goals for the upcoming month of November – and the corresponding list of tasks for the upcoming week.

Sometimes your children wake you up around 11 and keep you up until 4, meaning you sleep in until 8 and are exhausted through the day.

Sometimes said children are also exhausted and battling colds, meaning that every little thing is worth bawling about and the couch gets more pee on it than the potty does in it.

Sometimes you have to close out the day, with its list of unfinished tasks and just be thankful that you made it through the day mostly in one piece.

Sometimes you have to adjust your plans.


Daniel Does Something About It

After a few months of sleeping through the night, Louis has started waking up again. Only now, when we go to comfort him, we often find his sister fast asleep on his mattress beside him – with him hanging off the mattress (onto the floor 4 inches below) in various degrees. Sometimes it’s his legs, sometimes just a foot, sometimes his head. Sometimes all it takes to get him back to sleep is to position him so he’s fully on the mattress – and sometimes it takes hours of rocking and walking and reassurance. You just never know.

But when I was battling the stomach flu this last weekend and Daniel was therefore taking night duty, Daniel decided that enough was enough.

He arrived home from church and announced that he was going to build the kids that bunk bed we’d been putting off until after we got the house foster-care ready.

And so he did.

Tirzah Mae and Louis on their new bunk bed

Wednesday night was their inaugural night in their new bunk bed. Louis was kept inside the bed by the rails all around. Tirzah Mae was apprehensive enough about going down the ladder on her bed to join Louis in his. And both of them slept through the night (inasmuch as I could tell since I slept through the night. Well, except for that time when I had to pee, and when the baby kicked me awake, and…)

I’m not confident that it will continue to be successful at keeping Tirzah Mae in her own bed – but I do know that Louis’s new guard rails are sufficient enough to keep him from rolling onto the floor, and hopefully sufficient to help him stay asleep.


Time to Stop Stockpiling

For a while now, I’ve been doubling a recipe or two a week, stashing the second recipe in the freezer for when/if I or baby end up in the hospital.

Tonight, I doubled a beef enchilada recipe that was supposed to make a 9×13 pan – and ended up with three 9×9 pans and one 9×13 pan, and a little extra. How does that work?

So now my freezer contains…

  • a 9×13 pan of beef enchiladas
  • two 9×9 pans of beef enchiladas
  • a 9×9 pan of turkey enchiladas
  • a 9×9 pan of Aztec casserole
  • a 9×9 pan of my mom’s meatloaf
  • a 9×9 pan of Cajun meatloaf
  • a container of BBQ pulled pork
  • a recipe of Swedish meatballs
  • a recipe of Crockpot BBQ meatballs
  • a recipe of ricotta gnocchi
  • a recipe of turkey tortilla soup
  • a recipe of oven beef stew
  • a recipe of corn chowder with chilies
  • a recipe of chili
  • a recipe of potato corn chowder
  • a recipe of West Virginia soup
  • a recipe of Great Grams Spaghetti
  • a couple of pizza crusts
  • a few jars of pesto
  • a recipe of refried beans
  • a dozen or so bean and rice burritos

That’s what? 3 weeks or more of meals?

And we’re already at 33 weeks with no particular end in sight (Eeek! It’s so crazy to be HEALTHY this far into pregnancy!) Go much longer and we might not even need a NICU stay.

I think it’s time to stop stockpiling.


Take heart

“What’s this song about?”

It’s a question Tirzah Mae asks me a half dozen times a day.

It’s a question I love to answer because it forces me to listen to the music that’s on, forces me to articulate the message in simple terms.

But this time, the question discomposed me. We were in the car listening to a random “Christian” CD we’d borrowed from the library. A “Christian” CD that was basically the prosperity gospel set to music.

I blustered a bit. “Well, this song has bad theology. It’s saying that if we trust in Jesus, we won’t have any problems.”

And as the song promised believers would be “on top of the world” and as the singer ad libbed what sorts of things believers would be “on top” in (money, physical health, possessions, families, fame, more money, more possessions…) As the song pushed on with its false promises, I was reminded of – and told my daughter of – a true promise Jesus made:

“In this world you will have trouble. But take heart! I have overcome the world.”
~John 16:33 (NIV)

I told my daughter that God promised that we would have hard times, but that those who believe in Jesus have Jesus to walk with them during the hard times on this earth – and that those who believe in Jesus have the promise that God will set everything right in the end.

And then I had to stop lest the tears obstruct my ability to drive.

But I kept thinking on the promise of God for a good long while. I was moved to worship the God who has overcome this world – even though all has not yet been put to right. And I was moved to pray for those pitiful souls who are clinging to a false promise of ease in this life and do not know the joy of trusting Christ for what HE has promised (and will surely bring to pass).

“If in Christ we have hope in this life only, we are of all people most to be pitied.”
~1 Corinthians 5:19 (ESV)

Tirzah Mae’s question was a simple one – and one I didn’t really know how to answer – but the process of attempting to answer it turned what had been background noise (and theologically incorrect background noise at that!) into an opportunity to worship God and pray for the lost.

Take heart, dear believers, who feel on the bottom of the world – whether because of a job you hate, an income that doesn’t seem to make ends meet, relationships that are broken, health problems that seem insurmountable, or any other thing. Take heart, Christ has overcome the world.

And, if you have been placing your hope in this world – in the pursuit of fame and fortune and comfort and family or in any other thing – know this, those things will never satisfy. All the hope this world offers is hollow. Place your trust in Christ – he has overcome this world.


Countdown

Reading the mommy blogs and the Facebook posts from pregnant women, you can get the impression that there’s a certain universality of experience for all mothers. Sure, there are often-bitter differences: medicated or unmedicated childbirth, vaginal or cesarean, breastfeeding or formula feeding, cloth diapers or disposable, cosleeping or cry-it-out. The list goes on and on. But all mothers can agree: the time will come when you feel SO PREGNANT you just CAN’T WAIT for this baby to be BORN ALREADY!

And surely this is a common experience for many mothers. Pregnancy can be uncomfortable, as can other people’s comments on your pregnancy. The restrictions (warranted or unwarranted) on pregnant women can feel stifling. Many women are eager to sleep on their stomachs, to reach their toes, to eat yummy soft cheeses, and to experience relief from the ubiquitous lower-back-ache.

But some of us, we mothers of preemies who persist in getting pregnant, have a different experience.

I think I can understand how normal women feel, how impatient they become with the waiting, the comments, the ungainliness of a heavily pregnant frame. But I can’t imagine ever feeling so pregnant, so eager for my pregnancy to end.

Instead, I tease about inducing at 44 weeks, about making up for lost womb-time.

I have two countdowns on my telephone: the one, a preset in the “pregnancy mode” for my period tracker, tells me how many days there are until my EDD (expected due date); the other, of my own creation, tells me how many days I have until I’m more pregnant than I’ve ever been before.

34 weeks and 3 days.

That’s the most of pregnancy I’ve experienced. And I’ve always spent the last few weeks of pregnancy in bed or severely limited, willing just one more week, one more day, sometimes even one more hour before the doctor comes in to tell me that it’s time.

It’s not time, my heart screams, even as my head nods and my voice tells him I’m ready to start the induction (or, in Louis’s case, to try to turn him so we can start an induction instead of another section).

As my due date tells me I’m nearing the last third of my pregnancy, my personal countdown reminds me that any day now my blood pressure could start rising, I could start putting on water weight in earnest, I could start spilling protein in my urine. Any day now, I could go on bed rest.

The road map is impressed on my mind: If things progressed like they did with Tirzah Mae… If things progressed like they did with Louis… But the differences between my pregnancies with Tirzah Mae and Louis also remind me that progressing differently doesn’t mean IT isn’t going to happen. I still could be preeclamptic.

Now, as the numbers on my countdowns slip lower and lower, I whisper my wishes to the Father who knows all things and who ordains all things for his glory: Lord, if it’s your will… let this pregnancy go to term.

-7 days

-14 days

-21 days

-28 days

-35 days

-40 days

I don’t want this pregnancy to end.


Catching breath

What can be more instinctive, more natural than breathing?

The deep inhale, the cleansing exhale. Oxygen to our lungs, carbon dioxide released. In and out. Over and over.

Automatic, unlabored breath.

We don’t think of it until something goes wrong, until we’re laboring to climb stairs or in a sprint to catch a youngster who insists on running out into the street. Don’t notice it until allergies plug the nostrils that usually carry the life-giving air in, the poisonous carbon dioxide out.

But then, all we can think is of our need to catch our breath.

This is how I feel about my routines, the air I breathe day in and day out.

I am a creature of habit, a lover of the routine. I delight in days that flow effortlessly from habit to habit, like breath flowing effortlessly through my airway to my lungs and back.

But when the exhaustion of first trimester met the exhaustion of a mother who hasn’t slept through the night for nine months and then a bout of food poisoning (for myself and the not-yet-sleeping infant) took me out, I was left heaving like a woman who’s just run up twenty flights of stairs with a panda on her back.

I desperately needed to catch my breath.

But no matter how hard I tried, it seemed impossible. I couldn’t figure out how to establish a reasonable morning routine, much less a full day one.

I’d set my standards low. I wasn’t worrying about exercise or ambitious projects. I just wanted to see the living room floor once a day, do the dishes after meals, and not have three loads of clean laundry waiting to be folded at any given time.

I knew from past experience that morning was the best time to get things done – before I’d lost my energy and motivation.

But no sooner did I have the dishes cleared from the breakfast table and already the children were clamoring, the mess was driving me nuts, and I was already ready to snap someone’s head off (usually my daughter’s, hers being the nearest.)

I needed to catch my breath.

In desperation, I turned to Google, searching “preschool routines” or “toddler rhythms” or something of the like. And more often than not, I ended up with a suggested morning schedule for a preschool classroom. Those were not particularly helpful, given that I was trying to get my OWN tasks done. What I wanted was something to tell me how to set up my own rhythms around life with a toddler.

And then I stumbled upon Rudolf Steiner’s Waldorf method and the novel idea of routines as an interplay of breathing in (internally focused activity) and breathing out (external activity).

I was intrigued, especially by the idea that the teacher (in a Waldorf school) should aim to be accessible and attentive for breathing-in activities and should be present and busy at her own work for breathing-out activities. I decided to give it a try. I reorganized my morning routines to alternate between breathing-in activities, in which I focused on the children, and breathing-out activities, in which I focused on the home or on my own pursuits.

And, just like that, our household slipped into automatic, unlabored breath. So many of the frustrations and irritations I’d been struggling with in the mornings? They were gone. The children could play peacefully among themselves while I cleaned up from breakfast and did just a few quick cleaning tasks because they had just been breathing in my conscious presence at breakfast (rather than vying for the attention I was giving my phone). They let me exercise in peace because I’d first filled their lungs with presence while we did our action songs and finger rhymes together.

Is it perfect? No. I still have plenty of times where I’m struggling to catch my breath, when the frustration and the irritation sets in. But now, instead of attempting to sprint all day long and only catch my breath in the evening, I’ve established rhythms that allow me to breathe throughout the day.

And what a difference it has made, catching breath.


Priceless

Tirzah Mae peeled the barcode off her new water bottle and affixed it to her shirt.

I noticed it on our way out of the grocery store and began to tease her.

“We need to find a scanner so we can see how much you cost.”

“Are you a bargain or are you pricey?”

I contemplated adding the numbers I knew, the ones I’ve quoted to others.

Half a million dollars.

That was the sticker price for her first twenty-nine days outside the womb. (Neither we nor our insurance company paid the sticker price.)

I thought back to my question: “Are you a bargain or are you pricey?” Yes.

I didn’t quote that number to my daughter, couldn’t quote that number.

Instead my daughter listened and watched, a bit baffled as her mother choked out the words: “You’re neither. You’re priceless. Because you’re made in the image of God.”

So she is. And so are you.

Am overwhelming truth.


Only one patient

Childbirth stories never fail to pique my interest. Birth has been a passion of mine since I was young, reading my mom’s copy of Rahimah Baldwin’s Special Delivery. But since I’ve become a mother, my interest in childbirth stories has only increased.

So when the headline “Focus On Infants During Childbirth Leaves U.S. Moms In Danger” showed up in my newsreader, I clicked through to NPR’s report. And when I finally got the time to read the whole thing (it took several sittings because, hello, newly pregnant mother of a toddler and an infant), the story hit home in a way I wish it hadn’t.

The statistics are nothing new for me. The United States does a terrible job of keeping pregnant and postpartum women alive when compared to the rest of the developed world. I knew that. But this is a story with a face. The face of a woman with preeclampsia, with HELLP syndrome – a woman with what I had. A woman who died, leaving her baby behind.

There were warning signs. Signs that weren’t heeded. There were lots of opportunities to save her life. But when she or her husband suggested that preeclampsia might be the problem, they were pooh-poohed. And she died.

The text of the article hinted at rather than driving home the point the headline made: “Focus on Infants during Childbirth Leaves U.S. Moms in Danger” – but I couldn’t help but relive my own experiences.

When I think back to my hospitalizations with Tirzah Mae and Louis, one of the hardest things for me to deal with was how the focus shifted from me to the babies the moment they were born. Before they were born, I was the patient. The nurses checked on me hourly. Every care was taken to keep my blood pressure low and to keep the baby inside me healthy.

But once they were born, it was as if a switch was flipped. Never mind that I had the exact same (life-threatening) condition I’d had before the babies were born (now with major abdominal surgery added on top of it). I was no longer carrying a baby, so I would be just fine. My baby was the important one. It was as if only one of us could be the patient. My turn was over and it was the baby’s turn.

Thankfully, with Tirzah Mae, I started improving after her birth and continued to improve.

With Louis, a medical error – a resident forgetting to prescribe me my blood pressure meds when he discharged me on a Friday afternoon four days postpartum – could have meant my death. By the grace of God, I took my blood pressure that Saturday afternoon just as I had every day of my pregnancy since my morning blood pressures had started to rise near the beginning of the third trimester. My blood pressure was at critical levels.

Rather than going to the hospital to hold and feed my baby on his fifth day on the outside, I traveled to the hospital for another purpose – to live to hold and feed my baby again. I spent hours in the ER getting one dose after another after another of IV labatelol. It took five doses to get my blood pressure back down.

I’m not angry with the nurses, with the doctors, not even with the resident who failed to prescribe me a blood pressure med on discharge. But I am angry with a system that only considers a woman’s health important inasmuch as the baby is kept healthy. Why can there only be one patient?

Is it not just as important that these babies we rightly fight to keep alive and well in our NICUs have mothers who are alive to care for and love them?

Why must there only be one patient?


Snapshot: Louis drives

We were heading to the “Forum on Race” that our church is co-hosting this evening with another church in town when our electronics started flashing off and on.

We stopped in a park lot to see if we could figure out what was going on – and couldn’t restart the car.

So while we’re waiting for Triple A to show up, Louis is practicing his driving.

Louis drives